Oh this is such a sweet story... How lucky the parents are to have raised such an angel like that...It has to be 1 of the hardest things ever to lose a child. I know how precious my own 2 kids are and I cant even imagine what they as parents are going thru, hopefully finding some peace in all those little love notes around the house, only God knows what they truly feel and those who have experienced it themselves!!! It is really sad that the people who posted negative comments must not even know the meaning of Love, Caring or Compassion... thats ok we dont need to judge the negative ones either, that just puts us down to their level... God will do the judging on them one day we need not worry about that... As to the parents *** Peace to you and Good Luck with your fundraising for finding a cure your daughter is something to be proud of, many prayers go out to your family *** Nikki