Neatorama Posts Tagged "rare disease"
Uncombable Hair Syndrome...

A lot of people have curly hair that's hard to com...  ...ound. It's caused by a gene mutation, and is very rare . Only about 100 people in the world have the synd...

http://www.neatorama.com/2017/08/10/Uncombable-Hair-Syndrome/
When the Patient Is a Gold Mine...

For most of the 20th century, drug companies ignor...  ...most of the 20th century, drug companies ignored rare diseases , because it wasn't prudent to sink millions of do...  ...ons of dollars into research to develop drugs for rare patients. If less than 200,000 people in America...  ...s. If less than 200,000...

http://www.neatorama.com/2017/05/26/When-the-Patient-Is-a-Gold-Mine/
The People Who Slowly Turn to Bone...

Stone Man Syndrome is a very rare condition in which a person’s tissues turn...  ...one tissue, even when that's not appropriate. The disease is so rare that even identifying it is difficult, much less...  ...s progressiva (FOP). Learn more about the genetic *strong cl...

http://www.neatorama.com/2016/09/29/The-People-Who-Slowly-Turn-to-Bone/
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