Comments on: Proteus Syndrome

By: Who_Knows?

Who_Knows? — Mon, 19 Jan 2009 01:02:55 +0000

I wonder if her legs will make some futile and horribly disfiguring attempt to regrow if she amputates them? She should take that into consideration.

By: SenorMysterioso

SenorMysterioso — Thu, 18 Sep 2008 14:16:17 +0000

Ive seen her on television recently as well. I found it interesting that she was anticipating the day that she would need to amputate her legs so that she could enter a wheelchair marathon.

By: Pol x

Pol x — Thu, 18 Sep 2008 13:27:54 +0000

Proteus Disease also causes the distinctive walnut shell look to the areas affected, the souls of the feet if affected are particularly effected. But Miss Sellars feet were smooth.

I don't think there has been a definitive diagnosis yet that everyone could get behind.

I saw her on TV a couple of weeks back and she came across as a splendid sort of person, very kindly.

She was debating whether to have her legs amputated as they are demanding so very much from her body, as the article says she is very slightly built, or as they say round her neck of the woods "more meat on a butchers pencil".

I do hope she doesw get an an absolute diagnosis, and some relief, be it amputation or stem cell miracle.

By: JTPednaud

JTPednaud — Thu, 18 Sep 2008 01:55:18 +0000

Mandy Sellars was documented some time ago in a TLC special I consulted on. At that time her condition was undiagnosed and I must say that I am surprised by the Proteus positive result. Her deformity is not really typical of the condition and I was quite confident she suffered from Milroy’s Disease as Fanny Mills before her.

Now I wonder if Fanny's diagnosis should be reconsidered.
http://thehumanmarvels.com/blog/?p=42

By: lisanocap

lisanocap — Wed, 17 Sep 2008 20:36:03 +0000

no jimbo, what would be funny is if you fell down in front of her and she didn't see your tiny tiny head and stepped on it.

By: Jimbo

Jimbo — Wed, 17 Sep 2008 19:37:56 +0000

..and it's really funny when she sees a mouse!