Mermaid Girl Triumphant

Posted by JTPednaud in Medicine on October 9, 2007 at 10:33 am



Link to LifeLeak Video

Shiloh Pepin of Kennebunkport, Maine was born with Sirenomelia or Mermaid Syndrome. The condition is as rare as conjoined twins and results in the congenital deformity of lower limb fusion. The condition is usually fatal due to abnormal kidney and bladder and development function.

Shiloh is one of only three persons living with the condition. She triumphs over what others would consider a debilitating handicap with a spirit as enchanting as the mythical creature her condition is named after.

Update: Shiloh requires a second kidney transplant and the family is accepting Paypal donations through their official website.

Link


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COMMENT

7 comments to "Mermaid Girl Triumphant"

  1. Alex
    October 9th, 2007 at 11:53 am

    Oh my God! That is touching. Here’s the website for Shiloh: Link. You can donate online (I just did) with PayPal.

  2. JTPednaud
    October 9th, 2007 at 12:12 pm

    Thanks Alex, I’ve altered the above article to reflect that information and made a donation myself.

  3. Alex
    October 9th, 2007 at 12:22 pm

    Thanks JTPednaud - I’ve added a link to the video for the RSS readers. Great find, btw.

  4. Nora
    October 9th, 2007 at 4:14 pm

    Poor kid. An easy no-hassle donation is a few clicks away, yay for paypal! *click and done*

  5. Sara
    December 5th, 2008 at 8:54 pm

    I was so amazed when I saw Shilo’s story. What an incredible, beautiful little girl. My heart goes out to her wounderful parents. What strong people. The world is in need of more parents like these. My two year old daughter is absolutley inlove with mermaids. What a beautiful creature to be compared too. God Bless you.

  6. JANE
    December 14th, 2008 at 9:33 pm

    WHAT A BEAUTIFUL LITTLE GIRL. YOU ARE SO BRAVE AND SO SMART. YOUR PARENTS HAVE EVERY RIGHT TO BE SO PROUD OF YOU. SHILOH YOU ARE A DELIGHT AND A TRUE LITTLE PRINCESS (I NOTICED YOUR TIARA!) YOU HAVE TOUCHED MANY PEOPLE WITH YOUR STORY. I WISH YOU ONLY THE VERY BEST LIFE HAS TO OFFER. YOU ARE AMAZING. GOD BLESS YOU AND YOUR FAMILY.

  7. MyOpinionAndMe
    February 9th, 2009 at 10:43 am

    I saw this story on TV last night. My heart was hurting for the family. It was cool to see her swim. One main concern was that Shiloh is very over wight which is causing problems with her getting around and her back.I did not understand the doctor and the parents allowing her to make the decision to separate her legs. She is eight years old, eight year olds do not have the emotional and mental maturity to make this decision. Also, the problem with the weight, it appears that the whole family needs to go on a wieght program then maybe Shiloh will have a positive influence. I wondered why the surgery was not done when she was a baby, as some of the ones that I have read about. I know that she had a kidney problem. As I said my heart goes out to Shiloh, but her family needs to step up and take responsibility.


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