Marlie Casseus, a 14-year old Haitian girl, suffers from a rare form of Polyostotic Fibrous Displasia. This condition is a genetic disease that causes bone to become "like a big bowl of jelly with some bone inside". In Marlie's case, it's a 16 pound tumor on the face.
From the website:
Doctors at the Holtz Children's Hospital has performed the initial surgery to remove the tumor, but is seeking to raise funds for the reconstructive surgeries.
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